![]() Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms.īeyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. ME/CFS can cause significant impairment and disability. Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. Pediatrics Quality of Life Inventory (PedsQL) dĬhecklist Individual Strength Questionnaire b Short form of the Child Health Questionnaire b Substantial decrease or impairment in function: children Katz Index of Independence in Activities of Daily Living dįIQR (Fibromyalgia Impact Questionnaire Revised) d The Lawton Instrumental Activities of Daily Living (IADL) Scale d SF-36 b (RAND-36 is available as a free version of SF-36) Work and Social Adjustment Scale (WSAS) a Substantial decrease or impairment in function: adults
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